Kaleb is doing very well! They took the breathing tube out earlier this evening. Seemed early for me but what they're saying to us is that the kids do better with it out. As most of you may know, this is the first surgery that changes the pressures in his circulation. The blood flows slower in is head then before. This is causing kaleb to be in a lot of pain, however the pain meds can slow the breathing now which is also very painful. We're in pain management mode and it looks like it will be a long night. It is very hard to watch tears flowing out of your child's eyes and there is nothing you can do about it. We've been told that it takes the body a couple days to adjust to the "passive" flow. Many of the nurses and doctors here say this is the worst of the three surgeries. So far kaleb is going in and out of pain spells. It looks like its going to be a long night for us and some shifts may be in order. Other than the pain everything else is great! Bleeding is slowing, labs are good, and oxygen levels are mid 70's. They drop below 70's during his pain spells and needs extra oxygen help. May sound a little bad but we're following the textbook right now and we may actually get some central lines out tomorrow.
Thanks again to all that have prayed and thought about kaleb today! Miracles do happen and you're all part of this one!!
So glad for the good report. He does lookgreat and I can only hope you can all have lots of insight to control the pain for the little guy. At least being inside right now is the only way to beat the heat. Take care of yourself and thanks for updating.
ReplyDelete